Monthly Archives: February 2021

Panic attack, grief ambush, anxiety…or something real?

It’s a trick question on multiple levels: The list sentence format suggests that these are three distinct entities, and then parallel structure puts them all at odds from “something real”. What if they aren’t mutually exclusive?

What if they are all, each and overlapping, real?

I needed an entry framework for thinking about this, so I pulled together how the Mayo Clinic described the experience of Panic Attack, Complicated Grief, and Anxiety Disorders (General). Even at a glance, it was clear that Panic Attack and Anxiety Disorders have comparable lists. Complicated Grief has longer descriptions, and more of them. Next, I used color coding to cross reference — I used a red heading with Panic Attack, and any signs or symptoms that also appears with Complicated Grief (headed in blue) I made the text purple. Similarly, anything orange overlaps with Anxiety (headed in yellow). Those related signs or symptoms shared between Complicated Grief (blue) and Anxiety (yellow), I had the text written as green.

For a larger view of this thought experiment, here is a downloadable .pdf.

A three-column review of signs/symptoms described by the Mayo Clinic as associated with Panic Attack, Complicated Grief, Anxiety Disorders (generalized).
A contrast across “Panic Attack, Complicated Grief, Anxiety Disorders (General)” developed by signs & symptoms listed from the Mayo Clinic website on 12 February 2021.

As a next step, I wanted to differentiate out subjective interpretations of experience, and bring awareness to “objective” elements (which are underlined). For my purpose I identified those as “observable and/or measurable by established and often standardized means.” For example, it surprised me some that the heart rate was not qualified. My own experiences with panic attacks and anxiety has found that sometimes I sense my heart is beating too fast or irregularly, but when checked on my cuff or during times I wore a harness monitor, there was nothing outside of the ordinary for a woman my age.

My distinctions are definitely arguable. “Numbness” has more than one meaning, one of which is an altered sensation of physical touch which can be measured with reliable, validated means ranging from minimally invasive sensitivity/awareness with a tongue depressor or Q-tip to more involved needle + electroshock measurements. I’m not certain that this is the meaning intended by how it is listed above. I think the more likely meaning refers to absence or dulling of emotional feeling, and that is a significantly more personalized impression.

For a moment, I’m going to set aside how few objective symptoms are indicated under Complicated Grief, and that that is not what I originally set out to compare in this thought experiment (“Grief Ambush” was not listed at the Mayo Clinic website at the time of this writing). If a patient is a person like me with a long and diverse history of not-normal-for-a woman-my-age challenges + corresponding variety of patient portals, there is a calculation on my own of trying to figure out (a) what is happening, (b) how serious is it, and (c) who do I reach out to?

X-ray of my left wrist taken in the Fall of 2019

There are really only two reasons I would choose to go to an emergency room or outpatient clinic: 1) I know exactly what is going on, or 2) I am ready to die and do not want to do so at my home. When I am concerned I have a urinary tract infection (UTI) or question if I have broken a bone, an ER or outpatient clinic is fine. These kinds of problems are readily assessed and determined with clear paths of response. For other circumstances, it has consistently been my experience that we are a not a good fit for one another: they almost never have seen someone like me = a frustration and (liability) anxiety for them, and I end up with my belief that I am super weird beyond common medical practice confirmed again*.

*This statement contains many cognitive distortions which are not helpful. I see them and am staying with them for now.

Heart rate, sweating, and trembling — overlapping between panic attacks and anxiety, or a problem with my hypertension (high blood pressure), OR maybe I exercised in a way that was unfamiliar to my ‘underconditioned’ body. Altered breathing is often a cause for alarm among some because I have a history of congestive heart failure. I’ve learned to understand additional elements such as whether I can lay completely flat comfortably (or feel like I am suffocating/gasping for air), and/or if I can continue holding a conversation while on a walk on an uneven surface. Aside: Knowing these are indicators of elevated concern with my heart history, if I experience them, I have to manage my emotional reaction so that I do not make the situation worse/more complicated. Upset stomach such as loss of appetite, nausea, or gastrointestinal (GI) distress? Could be a result of panic, anxiety — also grief, even though it is not mentioned — but I have been taking magnesium supplements for ten years now which carry known adverse effects of stomach problems, the potassium supplements sometimes come with abrupt heartburn, many of my other meds taste terrible (altering my interest and reception of other tastes), my gall bladder was removed in January of 2020 which impacts how I relate to food both in the moment and after, plus I am still available for all of the ‘regular’ ailments which turn the tummy such as a virus or food poisoning.

I confess: determining (a) what is REALLY happening, and (b) how serious is it REALLY, is complicated. I do not always know (c) who do I reach out to to figure it out, and that experience of not knowing has its own dimensions.

There’s that word again: complicated. At the top it was associated with grief, and I want to bring those two together and then bridge to the thing I was really aiming for (grief ambush). Complicated grief as a medical entity is associated with a timeline; accordingly, six months of a sustained presentation of the signs and symptoms listed will likely qualify. I am not in a position to say whether that’s a really long time to be living a life characterized by intense sorrow, pain and rumination or if that’s around when the majority of people begin to feel differently on average. There would likely of been a change in season, and time has a way of blurring edges.

Grief ambush though. There’s something acutely distinct about the overwhelm of memories, emotions, sensations, and thoughts that collapse from an unanticipated push of a lingering domino I didn’t know what still out there.

May be an image of text that says 'VZW Wi-Fi 8:46PM PM Library 74% 1 Track 01 ....Track 01 1Trak0 1 Track 01 Track 01'
Screenshot of my phone upon opening an “album” called “UNKNOWN…” The first Track 01 turned out to be the song “Bridge Over Troubled Waters”

Simon and Garfunkel’s “Bridge Over Troubled Waters” was not just a song. It was the first song at my Dad’s funeral service, and quite possibly one of the songs at my Mom’s. I don’t remember that one as clearly (blurring of the edges). Why it was on my phone, in an album called “Unknown”, as a Track called 01, which was one of three Track 01’s is a mystery to me.

Cognitively, my mind went blank. Like an old-style t.v. that has been turned off: a burst, static, and quiet.

Physically, I no longer had a clear sensation of my body other than my hand holding the phone. I was a little dizzy as though my head were a helium balloon floating somewhere else. There was a heaviness in my upper chest.

And, I was not afraid. All of this was momentary. It had a familiarity. As the day wound away from this moment, I was physically depleted: low energy and appetite. Intellectually, I craved familiar and non-challenging content — I ended up re-watching a cooking show I’ve seen easily 5 times already.

It wasn’t until much later when I tried to problem solve how this song came to be on my phone in this way that I realized I held sorrow, too. It’s a beautiful song, and a sad memory. Now both of those each and overlapping, are real. Neither is “real” in a way that is objectively recognized with shared understanding and measurement.

That was when I realized it was the Loss Domino that tumbled into my thinking. That set a course for distinguishing panic, grief, and anxiety isn’t necessarily about whether they feel any different from one another. It’s about what thoughts they collide into, how I relate the then it bridges into my now, and who is in that moment with me.

End blip.

Where do “strength” and “confidence” go?

For awhile now, I have been working to refine my sense of physical and emotional suffering, which I termed globally as pain/concern. More recently I have been trying to wrap my thinking around a different combination of physical and mental complications. My assessment of whether or not I can do something, am successfully doing it or need to adjust immediately, or believe I cannot do it and will not even try includes: anticipating pain or task failure, in-the-moment pain or mistakes, and backlash either as regret, ache, or a mess that shows up later. It’s a heady mix of questioning strength and confidence.

On the first warm day of 2014, I tried to put up the porch table umbrella so that we could eat lunch outside. It slipped & the angle shattered the table into a gazillion shards of glass which completely covered the porch + fell into the rocks/grass below.

What I remember most clearly about the moments immediately after when I had destroyed our table, was that it had not in any way occurred to me that I couldn’t do this on my own. I had retrieved the umbrella from the shed, carried it across the yard + up the porch steps, held it over the height of the table to position it in the center…

I had done this before — it was not a new task to me although it was typically only once in Spring install and one-time removal in Fall. I don’t think I knew the table was glass. It never occurred to me that it could completely crumble into a gazillion sharp edged pieces…

Also, I was in somewhat of a hurry. Food was in some stage of being prepared, the 8-year-old twins were ready to eat. I couldn’t let them anywhere near this. I didn’t want anyone else to have to clean up this catastrophe. I kept imagining bloody footprints from yard creatures getting cut by my gross err in judgment.

Worse still, I was not physically capable of cleaning it all up. I became dehydrated and light-headed, the glass was too heavy, the sunshine blazing. I was so deeply sad that I had to give it over to my husband. It all felt awful.

In August of 2019, I was picking my teens up from a summer art camp, and completely missed a step at the front door of the building. That fall lead to a broken wrist, with a radial plating system surgically implanted.

In the moment, I did not see the fall at all. I know I witnessed it at a subconscious level because it was returned to me in dreams later. Had I noticed the step, I am sure I could have been both physically strong and entirely confident = successfully completed the act without injury. But that really does not matter because that’s not at all what happened.

Sitting on my couch right now, I cringe and fix my jaw at the memory of it even still. My sense that I will see the potential problems feels pretty unreliable. Where do strength and confidence go?

If these kinds of categories were to get added to the Tell Me About Your Pain/Concern, how would I quantify anticipatory pain/worry? I have used the terms “ominous” and “dread” to physicians and physical therapists; as in, “I have an ominous sense that I am going to have severe heart burn from my potassium supplements, and I have to remind myself to relax or it is more likely to get stuck in the tension of my throat.” Or, “I know I am carrying myself very cautiously on walks because of dread that I may stumble.” I know that this is primarily a mental-emotional issue, and it matters because it directly influences how I act in the world even for the most basic activities of day-to-day living.

Reviews of ability to complete Activities of Daily Living (ADLs) that I have often seen relied on simple scoring: 2 = could do independently, 1 = could do with assistance, 0 = could not do. While this is easy to compute an overall tally, it may not adequately capture skill sets and the mental-emotional processes associated.

In 2019 when my Dad was in rapid progressive decline with ALS, I noticed trends which were both physical and mental-emotional in him (it’s easier to see such matters in other people than I tend to in myself). There was almost nothing he could do with complete autonomy and no modifications; but sometimes it was my sense that he answered according to what he wished were the case or based on how he had done the last time he’d tried even if that was awhile ago. Together we came up with a more representative set of characterizations:

5 = ABLE TO DO without apprehension or concern (e.g., not afraid of pain, falling, etc.): If he was already seated or lying down, he could use his telephone for brief calls.

4 = Able to do WITH CAUTION and CARE (that is, some discomfort likely such as strain or queasiness, may require pacing or preparation to complete). He could complete oral care tasks from a bathroom seat. He could consume protein drinks by straw. He had prepared his tax filing documents just before he started struggling more prominently, so in that sense he was well positioned with his finances.

3 = Able to do ONLY with strategizing ahead of time to break task into level 4 component steps; “warning” discomfort expected; must manage remaining strength and energy. In terms of managing medications with respect to dosages and times, this was probably at a 5; however, actually taking pills required numerous steps by others (assembling, crushing to powder, mixing in with applesauce or pudding), and also himself (remembering safe swallow techniques, pacing energy consumption for sitting up, etc.)

2 = ONLY able to do acknowledging IT WILL BE UNCOMFORTABLE + depleting. Pain + queasiness present at distracting but manageable levels. Energy depleting. Weakness is distracting. Walking with a physical therapist was dreaded even when at an emotional level he valued the concept; transferring into and out of the wheelchair.

1 = MINIMALLY able to do; SIGNIFICANT CONCERN: Toileting was a tremendous issue.

0 = UNABLE to do; UNIMAGINABLE: the idea of walking down more than 3 steps, doing laundry, and driving were all extremely complicated physically and cognitively, all bore very high probability for serious injury to the point it really wasn’t worth debating.

There are a number of standard ADL lists that I did not include in this because they weren’t relevant to my Dad’s life at that time — cooking and housework were not part of his daily life.

As I reflect on all of this now, I can see how these rankings incorporate both

  • the physical demands of the task, which includes capacity, strength, stamina, persistence and
  • a sensibility of prognosis: based on (recent) past experiences, what confidence do I have that I can do this successfully.

Said differently, how a person gauges across both of these that they can start, do, and complete something without needing someone else, and without having an accident which makes a bigger problem as either a mess or an added injury.

For as much as I dislike the anxiety + self-doubt of anticipating pain or task failure ahead of an event, the other end of this gamut is achy backlash, regret hangover, or aftershock. It is nerve pain that feels EXACTLY like a bee sting when I am brushing my teeth at the end of the night, knowing with certainty that I have not been stung but rather this is a residual complaint from an aggravation I did not notice at all in the moment it occurred. It is waking up the next day unable to turn to the left after carrying heavy groceries upstairs (maybe that’s what it was?). It is overwhelming guilt that maybe I will not go sledding with my kids next time because this time many muscles and joints hurt so, so badly by dinnertime. This may be the most debilitating of pain/concern because it lands so deeply in my ocean of shame. It is in these moments where my sense of myself — my personal metric of strength and confidence — is most challenged. Activities that do not come with a delayed pain/concern do not register in my memory. As a result, they contribute a much quieter impression of what I can do successfully.

As I read over all of this, I am reminded that my attitude about developing a Tell Me About Your Pain/Concern scale has always been as a tool for communication, patient advocacy, and health literacy. I’m not developing a screening measure or billing code where scaled numbers are calculated vertically to a singular number. What I really hope for all of this is to promote a broad-based framework towards productive conversations and those get individualized (more narrow) with the follow-up questions. With this in mind, characterizations about fear and quality of life could be immediately linked with further investigation of the role of strength and confidence.

It also validates making an explicit practice of “I did that” recognition — making sure that these become part of my history of me. This could be paired with explicit practice in low-stakes tasks: identifying when I have moments of doubt, and exploring those experiences in ways that I can readily find the boundaries of my strength and confidence. I may always have <5 ratings within my activities of daily living capabilities — may those be opportunities to build, broaden, adapt, and share with my medical/health care team.

End blip.

p.s. I did that.